Chloe had her 18 month appointment on Friday (even though she's really 19 months). She is doing really well. She weighs 25.5 lbs and is 31.75 inches long. For an 18 month old that puts her in the 60% and 48% percentile, respectively. She hasn't really grown since her 15 month appointment which is fine. I know 24 month pants on her are long. When she was in the hospital in February, the doctors said she needs to get the RSV vaccine this coming RSV season. Her doctor looked into how much to give and the cost and she told me Chloe will need 2 doses because of her weight for the whole season which is 5 months. Each dose cost between $1500 and $2000 (funny there's a $500 swing in there)!! What! Potentially $20,000 for the season! She wanted me to call the health insurance to make sure it's covered. I called today and the deductible has been met this year so it's covered fully this year and then in January we'll have to pay the deductible first which is no where near $20,000. Thank goodness.
That's all I have time for right now.
How life is going for us after the birth of our twins Chloe and Faith and then the loss of Faith after 41 days of life.
Tuesday, August 28, 2012
Monday, August 20, 2012
What's Happening?
Almost two weeks since the last post! Whoops! And of course now when I find a little time to write, I can't think of much. I'll start with this past weekend.
Sunday - I took Kylie and Chloe to the zoo. We had a picnic by the front entrance and then went and strolled around. In the penguin building there was a little girl standing next to us that first coughed into her hand (like whooping cough) and then said "baby!" and was going to touch Chloe's hand. I pulled Chloe into me and the little girls' mom told her not to touch. I'm not sure if it was in response to my reaction or not but it made me scared. If that child was truly sick, why would she be at the zoo. But you never know. We also headed over to Meijer Garden because Kylie wanted to and we have memberships to both places. She wanted to see the swamp for some reason. So we saw the swamp. Then it thundered a bit and I said "time to go." What a busy day.
Saturday - Went to a wedding. Kylie loves weddings and seeing the "married girl" and getting to dance. It was a beautiful wedding, I give lots of credit to the bride and groom and all who pulled it off in a couple of months. The father daughter song was "My Wish" by Rascal Flatts. That was the song in the e-card I sent myself from Faith.
Friday - I finally finished our story for Ella Bullis Foundation. I did it in pieces, so it wasn't too bad. Although, how can you not cry when you have to tell the part about your baby's death... I'll post here when I can, with a picture as I don't have a current family picture yet.
Sunday - I took Kylie and Chloe to the zoo. We had a picnic by the front entrance and then went and strolled around. In the penguin building there was a little girl standing next to us that first coughed into her hand (like whooping cough) and then said "baby!" and was going to touch Chloe's hand. I pulled Chloe into me and the little girls' mom told her not to touch. I'm not sure if it was in response to my reaction or not but it made me scared. If that child was truly sick, why would she be at the zoo. But you never know. We also headed over to Meijer Garden because Kylie wanted to and we have memberships to both places. She wanted to see the swamp for some reason. So we saw the swamp. Then it thundered a bit and I said "time to go." What a busy day.
Saturday - Went to a wedding. Kylie loves weddings and seeing the "married girl" and getting to dance. It was a beautiful wedding, I give lots of credit to the bride and groom and all who pulled it off in a couple of months. The father daughter song was "My Wish" by Rascal Flatts. That was the song in the e-card I sent myself from Faith.
Friday - I finally finished our story for Ella Bullis Foundation. I did it in pieces, so it wasn't too bad. Although, how can you not cry when you have to tell the part about your baby's death... I'll post here when I can, with a picture as I don't have a current family picture yet.
Wednesday, August 8, 2012
God Said "No"
We still don't have Internet hooked up, but the room looks great. Every night I go and pick up the mess that the girls created. It wasn't too bad last night. Maybe because Chloe was busy throwing her shoes down the stairs instead of messing up the room : )
I wanted to share something I received in an email years and years ago. I think I got it from my brother-in-law, Paul. It spoke to me then and it still speaks to me every time I read.
Isn't it really good? I think so.
I've been very bad about keeping up the blog, one main reason is the no Internet thing. But it just seems like I'm go go go now. Someone retired at work so my work load has increased, but so far so good.
I'm suppose to write 'our story' to send to Ella Bullis foundation so they can put it on the website. I got that email the beginning of July and I said "I'll get it to you in a week." Well 3 weeks have past. Thankfully they are great people so it's okay, but I feel bad, like missing a deadline or bill payment - icky feelings.
Honestly, I don't know if I can write our story down. I know it in my head, but to think back to write something down is terrifying me. It's sad and it will make me cry. I will do it because I said I would but how to get started.... Since we were featured on their site before there is a little story on us that I can start with.
Joel and I are both tired lately because Chloe seems to have issues during the night lately, where she's up crying. Sometimes it's just a couple of seconds, and I can get her back sleeping. Other times something is wrong like last night, I think her tummy hurt and she pooped finally at 12:30AM and did settle down after that. I like to sleep all night long, we need to try to head to bed earlier, that might help. It's funny because she is still a baby, like she was last year, except she doesn't have to eat during the night, so the encounters usually are quicker. I've got to remind myself to enjoy it now, she won't be this little for long. All I have to do is look at Kylie and what a big girl she is getting to be. Often now Kylie and I color together - it's the best. Her favorite color is all the colors : )
I wanted to share something I received in an email years and years ago. I think I got it from my brother-in-law, Paul. It spoke to me then and it still speaks to me every time I read.
GOD SAID “NO”
I asked God to take away my habit.
God said, No.
It is not for me to take away, but for you to give it up.
I asked God to make my handicapped child whole.
God said, No.
His spirit is whole; his body is only temporary.
I asked God to grant me patience.
God Said, No.
Patience is a byproduct of tribulations; it isn’t granted, it is learned.
I asked God to give me happiness.
God said, No.
I give you blessings. Happiness is up to you.
I asked God to spare me pain.
God said, No.
Suffering draws you apart for worldly cares and brings you closer to me.
I asked God to make my spirit grow.
God said, No.
You must grow on your own!, but I will prune you to make you fruitful.
I asked God for all things that I might enjoy life.
God said, No.
I will give you life, so that you may enjoy all things.
I asked God to help me LOVE others, as much as He loves me.
God said…Ahhhh, finally you have the idea.
Isn't it really good? I think so.
I've been very bad about keeping up the blog, one main reason is the no Internet thing. But it just seems like I'm go go go now. Someone retired at work so my work load has increased, but so far so good.
I'm suppose to write 'our story' to send to Ella Bullis foundation so they can put it on the website. I got that email the beginning of July and I said "I'll get it to you in a week." Well 3 weeks have past. Thankfully they are great people so it's okay, but I feel bad, like missing a deadline or bill payment - icky feelings.
Honestly, I don't know if I can write our story down. I know it in my head, but to think back to write something down is terrifying me. It's sad and it will make me cry. I will do it because I said I would but how to get started.... Since we were featured on their site before there is a little story on us that I can start with.
Joel and I are both tired lately because Chloe seems to have issues during the night lately, where she's up crying. Sometimes it's just a couple of seconds, and I can get her back sleeping. Other times something is wrong like last night, I think her tummy hurt and she pooped finally at 12:30AM and did settle down after that. I like to sleep all night long, we need to try to head to bed earlier, that might help. It's funny because she is still a baby, like she was last year, except she doesn't have to eat during the night, so the encounters usually are quicker. I've got to remind myself to enjoy it now, she won't be this little for long. All I have to do is look at Kylie and what a big girl she is getting to be. Often now Kylie and I color together - it's the best. Her favorite color is all the colors : )
Tuesday, July 31, 2012
Done, Sort Of
Well our upstairs is sort of done. For the most part we have our living room back, not everything is back in it but we are working on that. Our Dish doesn't seem to be working, I have no idea why. We have 2 receivers and the one we have in our basement works fine. It's seems because we didn't use the one for almost two months, Dish shut it off or something. I need to take a look at the bill and give them a call. I hope the floor doesn't drive me nuts. I have the urge to swiffer it every time I go up there because of dust and cat hair and everything else. I'm sure I will get use to it as the time factor (don't have time) is influential. I still have to convince Joel we need to put the computer at an actual desk so if Kylie is using it, she sits properly. Before the remodel, the computer screen was on an arm attached to the wall and we sat on the couch either craning our neck or twisting our bodies to see the screen.
Chloe is so cute, I want to give her kisses all the time. She is getting so smart too. She will bring you things or look for something if you ask her to. I don't feel she is delayed in anything. I think we always have these developmental session two weeks before we should because then they would see her walking and talking. She doesn't do full sentences of course but it's coming.
I can't leave out Kylie, she is too cute too. Such a girl. She will only wear leggings (no pants) when it's cold. Right now she mainly wears dresses with an occasional skirt and shirt thrown in. But the dresses either have to be long or frilly so she can twirl or have sparkles on it. What have we (I) done!! Just kidding, it's adorable now. Hopefully she doesn't reach a stage where all she wants to do is wear black : )
Joel and I have had some conversations with Kylie about Faith. She understands that Faith lives with Jesus now in Heaven with Aunt Jan-Al and Uncle Jason's dog and cat. She told Joel she wanted to go to Heaven to see Faith. Last night she asked us who else is in Heaven and I said Mommy and Daddy grandparents. "Only old people go to Heaven." We told her no, all ages go. We will have more of these conversations and I pray that we give good answers that she will understand. We did receive a grieving book for kids when Faith passed that was geared toward kids around age 6, looks like it's time to get that out and look at it.
Chloe is so cute, I want to give her kisses all the time. She is getting so smart too. She will bring you things or look for something if you ask her to. I don't feel she is delayed in anything. I think we always have these developmental session two weeks before we should because then they would see her walking and talking. She doesn't do full sentences of course but it's coming.
I can't leave out Kylie, she is too cute too. Such a girl. She will only wear leggings (no pants) when it's cold. Right now she mainly wears dresses with an occasional skirt and shirt thrown in. But the dresses either have to be long or frilly so she can twirl or have sparkles on it. What have we (I) done!! Just kidding, it's adorable now. Hopefully she doesn't reach a stage where all she wants to do is wear black : )
Joel and I have had some conversations with Kylie about Faith. She understands that Faith lives with Jesus now in Heaven with Aunt Jan-Al and Uncle Jason's dog and cat. She told Joel she wanted to go to Heaven to see Faith. Last night she asked us who else is in Heaven and I said Mommy and Daddy grandparents. "Only old people go to Heaven." We told her no, all ages go. We will have more of these conversations and I pray that we give good answers that she will understand. We did receive a grieving book for kids when Faith passed that was geared toward kids around age 6, looks like it's time to get that out and look at it.
Tuesday, July 17, 2012
Astigmatism
Chloe's eye appointment on Friday went well. It was only an 1.5 hours, I thought it would be 2 hours. The eye doc said she has a slight astigmatism (Astigmatism (uh-STIG-muh-tiz-um) is a common, mild and generally easily treatable imperfection in the curvature of your eye. The condition can cause blurred vision.) She doesn't need glasses yet, and we go back in a year to check it again because it could change. Now if we notice her doing strange things like bumping into walls then we would go before next July.
That's all I have time to report now. Our living room should be back to normal by next week (getting area rug and cleaning right now). I'll have to post a picture. Hopefully Internet will work.
That's all I have time to report now. Our living room should be back to normal by next week (getting area rug and cleaning right now). I'll have to post a picture. Hopefully Internet will work.
Thursday, July 12, 2012
Why do I live in Chaos?
Every day I feel like I don't have any control over what's happening. It's as minor as when I get to brush my teeth or as major as "Uh oh, this bill is due TODAY!" That happened yesterday, but luckily it was for a store so I stopped on my way home and paid it. Kylie just had to ride the escalator, so we did it once. I had Chloe in the stroller so I just left her and went on the escalator with Kylie because Kylie thought she could do it by herself. When we got to the top, she had no clue where to go to get to the bottom again. And no, I didn't leave Chloe, I left the stroller and carried Chloe.
I know God is in control, but I play a part in my life. Sometimes I feel like I'm just waiting for life to begin, or get better. Then I think "life is going on now, pay attention!" Sometimes I feel like things will be better once this is done or that is over. Will it really be better, or is that a pipe dream? Right now I would love to contract the whole house out so Joel was free to spend time with the girls and I. I don't offer up doing things because that would take away from him working on things. It's a crappy place to be. I don't know how to find any balance - with anything - Chaos. You'd know it if you saw my purse, what a jumble of stuff I have in it.
Tomorrow Chloe has an eye appointment. I pray that will go well and it won't take 4 hours. They will have to dilate her eyes. Now that she's more mobile, I'm not sure how this will go.
I know God is in control, but I play a part in my life. Sometimes I feel like I'm just waiting for life to begin, or get better. Then I think "life is going on now, pay attention!" Sometimes I feel like things will be better once this is done or that is over. Will it really be better, or is that a pipe dream? Right now I would love to contract the whole house out so Joel was free to spend time with the girls and I. I don't offer up doing things because that would take away from him working on things. It's a crappy place to be. I don't know how to find any balance - with anything - Chaos. You'd know it if you saw my purse, what a jumble of stuff I have in it.
Tomorrow Chloe has an eye appointment. I pray that will go well and it won't take 4 hours. They will have to dilate her eyes. Now that she's more mobile, I'm not sure how this will go.
Tuesday, July 3, 2012
Day 25
It's day 25 of the remodel of the upstairs (I'm excluding the downstairs right now because that's going on day 2,557). I'm doing okay with it, there have only been a couple of times when I got frustrated. What's more frustrating is the heat we have. There is no air conditioning in the house, we do have window units for our bedroom and for Kylie's bedroom so it's comfortable at night. And of course since the girls don't have anywhere to play but the bedrooms, it's perfect. These bedrooms are not big so it can get crowded quick with lots of toys around. I'm glad we have the plastic pool for the backyard too. It's funny watching Chloe. I start putting water in the pool and she just climbs right in and sits down. "I'm ready mom!" She loves water.
Hopefully we get some rain, now! I'm afraid some fireworks are going to set the house on fire. It happened to the church we used to attend. That's the theory anyway, fireworks. Nothing official yet as it happened at about 1AM Sunday. They salvaged a crucifix and some chalices from inside and that was all. I remember they had a campaign to raise money to improve the sound system, air/heat, add stain glass windows, new bathrooms, and some other things. They had done most of that, the latest was adding some beautiful stained glass windows. They will rebuild but wow.
That's all the time I have. I will be traveling with the girls to Iowa today. I pray the trip goes well. We'll be back on Sunday.
Hopefully we get some rain, now! I'm afraid some fireworks are going to set the house on fire. It happened to the church we used to attend. That's the theory anyway, fireworks. Nothing official yet as it happened at about 1AM Sunday. They salvaged a crucifix and some chalices from inside and that was all. I remember they had a campaign to raise money to improve the sound system, air/heat, add stain glass windows, new bathrooms, and some other things. They had done most of that, the latest was adding some beautiful stained glass windows. They will rebuild but wow.
That's all the time I have. I will be traveling with the girls to Iowa today. I pray the trip goes well. We'll be back on Sunday.
Subscribe to:
Posts (Atom)