My quick update is about Chloe and the RSV shot.
At the beginning of October, I called the pharmacy that will ship the shot to the doctor. They said they got approval from our health provider but they can't release it until RSV season starts and for Michigan that's November 1. They will contact me later in the month to get some approvals.
Last week we received a letter from the health care provider saying they've reviewed everything and coverage is denied. There is a sentence that says she is eligible for 5 shots but the doctor asked for more than 5 (2 shots for each month because of her weight). I'm not sure if they know that Chloe's weight is why the doctor ordered more than 5 but I took it to the doctor's office and I have to follow up to see if she had time to read it. I wasn't sure if all is denied or just over 5. The reason over 5 is denied is because there have been no clinical test showing the effectiveness of more than one dose. Normally, infants receive the shot, in RSV season up to age 2. If Chloe had gotten the shots last year, she probably wouldn't need it this year. She was doing fine last year until our day care closed and we had to send her and Kylie to a different, bigger one where, a month later, she had RSV in March. I'm a little worried right now as she has a cold. I could tell it was a bit hard for her to breathe through her nose last night : ( Poor baby.
Monday, October 15, 2012
Tuesday, October 2, 2012
What's Happening?
It's been awhile. I've written drafts of blogs that never got posted because I wasn't done writing them when I ran out of time. I'm going to push through this one no matter what because it's been so long it seems. I'll try my best to remember what's happening.
It was recommended that Chloe get the RSV vaccine for this upcoming season. I've been working with the doctor's office to get that set up because we want to make sure it's covered under insurance. There are only 2 approved pharmacies that distribute the vaccine. The recommended one has been contacted by the doctor's office and the nurse says the pharmacy will get in touch with me to get things moving. Well, I have not been contacted and the nurse has called twice now asking if I have. Ugh. The process started on Sept 19th so it's going on 2 weeks. No one has answered my question on if Chloe should start the vaccine in October or November because I had read somewhere to start a month early and the season starts November. I'm calling the nurse today to see if there's been progress.
Sunday we went to breakfast after church because we were then going to head downtown to see some more Artprize items. Artprize is a contest open to the public to submit art pieces of any sort of media (if a venue will accept the art). We saw items made from wood, tires, metal, paper, grass, and other. The venues are businesses both inside and outside in a 3 square mile radius downtown. We saw what was outside on Sunday. At breakfast, Chloe may have been super hungry, even though she had been snacking on Cheerios, because she was not happy. She seems to get very dramatic when she's hungry and it takes awhile to calm her down. She didn't want to sit in the highchair so I had her on my lap and tried to keep her entertained while our food took awhile to come out. We finally got our food and it took her a few minutes more to actually sit in her chair. This is a true balance game as she likes to throw things when she's not happy or you're not noticing her right away. She wanted to throw the toast on the ground but we stopped her. I gave her some ketchup to get her to realize she could eat. Of course she got some on her tights, but not on her dress. Kylie and her were wearing matching dresses I bought online because I thought they would look so cute and they did, I'll have to get a picture up here. At the end of our meal, I took Kylie to the bathroom and when I came back Joel told me that someone from church paid our bill. They told the waitress they think our kids are cute. They may also have felt for us with Chloe's behavior. That was really nice of them. I have never had the "pay it forward" happen to me. I need to "pay if forward" soon, it's a great idea.
Saturday we went on an old train for a hour ride. Joel and I weren't impressed. Kylie had an okay time and now she can say she was on a train. It was slow though and Kylie asked when we would be going faster. Guess we need to take the Amtrak to Chicago someday with her.
Last Friday I had made a dentist appointment for the same day as I had some pain in my mouth and couldn't chew on one side. The dentist tells me I probably have a crack in my tooth and need a crown. What! I've only have fillings done, nothing more. Is this part of getting older? I spent lovely hours in that office getting a temporary crown and having pictures taken of the tooth that needs the crown so it can be made. I go back on the 17th to get the permanent one. I hope it's better than this temporary one. I want to rip this one out as it feels foreign to me.
October 1 was Joel and my 7 year wedding anniversary. He got me roses, I got him a piece of blueberry pie. It was low key. Our date night a few weeks ago was the nice dinner. I'm not always on the ball about getting someone to watch the girls. Then when I think about it, I think everyone already has plans so I don't bother. I barely remember to tell day care in advance when the girls won't be in.
That's what's going on physically. Mentally, I don't want to go there today. I just know last week I had this cloud of doom hanging over me and it didn't help when I lost the van keys. I hate losing keys. I found them the next day thankfully. It's hard to shut my brain off and that annoys me sometimes, especially at night when I want to go to sleep. It's even more annoying when my brain is singing Strawberry Shortcake songs to me.
It was recommended that Chloe get the RSV vaccine for this upcoming season. I've been working with the doctor's office to get that set up because we want to make sure it's covered under insurance. There are only 2 approved pharmacies that distribute the vaccine. The recommended one has been contacted by the doctor's office and the nurse says the pharmacy will get in touch with me to get things moving. Well, I have not been contacted and the nurse has called twice now asking if I have. Ugh. The process started on Sept 19th so it's going on 2 weeks. No one has answered my question on if Chloe should start the vaccine in October or November because I had read somewhere to start a month early and the season starts November. I'm calling the nurse today to see if there's been progress.
Sunday we went to breakfast after church because we were then going to head downtown to see some more Artprize items. Artprize is a contest open to the public to submit art pieces of any sort of media (if a venue will accept the art). We saw items made from wood, tires, metal, paper, grass, and other. The venues are businesses both inside and outside in a 3 square mile radius downtown. We saw what was outside on Sunday. At breakfast, Chloe may have been super hungry, even though she had been snacking on Cheerios, because she was not happy. She seems to get very dramatic when she's hungry and it takes awhile to calm her down. She didn't want to sit in the highchair so I had her on my lap and tried to keep her entertained while our food took awhile to come out. We finally got our food and it took her a few minutes more to actually sit in her chair. This is a true balance game as she likes to throw things when she's not happy or you're not noticing her right away. She wanted to throw the toast on the ground but we stopped her. I gave her some ketchup to get her to realize she could eat. Of course she got some on her tights, but not on her dress. Kylie and her were wearing matching dresses I bought online because I thought they would look so cute and they did, I'll have to get a picture up here. At the end of our meal, I took Kylie to the bathroom and when I came back Joel told me that someone from church paid our bill. They told the waitress they think our kids are cute. They may also have felt for us with Chloe's behavior. That was really nice of them. I have never had the "pay it forward" happen to me. I need to "pay if forward" soon, it's a great idea.
Saturday we went on an old train for a hour ride. Joel and I weren't impressed. Kylie had an okay time and now she can say she was on a train. It was slow though and Kylie asked when we would be going faster. Guess we need to take the Amtrak to Chicago someday with her.
Last Friday I had made a dentist appointment for the same day as I had some pain in my mouth and couldn't chew on one side. The dentist tells me I probably have a crack in my tooth and need a crown. What! I've only have fillings done, nothing more. Is this part of getting older? I spent lovely hours in that office getting a temporary crown and having pictures taken of the tooth that needs the crown so it can be made. I go back on the 17th to get the permanent one. I hope it's better than this temporary one. I want to rip this one out as it feels foreign to me.
October 1 was Joel and my 7 year wedding anniversary. He got me roses, I got him a piece of blueberry pie. It was low key. Our date night a few weeks ago was the nice dinner. I'm not always on the ball about getting someone to watch the girls. Then when I think about it, I think everyone already has plans so I don't bother. I barely remember to tell day care in advance when the girls won't be in.
That's what's going on physically. Mentally, I don't want to go there today. I just know last week I had this cloud of doom hanging over me and it didn't help when I lost the van keys. I hate losing keys. I found them the next day thankfully. It's hard to shut my brain off and that annoys me sometimes, especially at night when I want to go to sleep. It's even more annoying when my brain is singing Strawberry Shortcake songs to me.
Friday, September 14, 2012
Tuesday, September 11, 2012
Date Night
Saturday Joel and I got a babysitter and went out for dinner. We went to One Trick Pony and had some excellent food. It was nice to get away, just the two of us. We had forgotten about Celebration on the Grand, but that's was okay, the restaurant wasn't busy. After dinner we walked a few blocks and tried to see if some of the bars were too busy. We decided they were so we went home. What an exciting night we had!! We are officially OLD. I was more willing to go to the bar than Joel was, but that was because he was feeling run down. He's got too much to do and not enough time to do it.
Last night when we got home there was a note on our door. The mason that will be redoing the neighbor's chimney has time and wants to start but our truck is in the way of scaffolding and he doesn't want any debris to fall on it either. Um, the truck's front tires are off because Joel has been fixing the breaks (which has been a pain because of the all wheel drive but on his truck it's rear wheel drive breaks, I don't get it. It's taken Joel awhile to have the time to investigate all this too.) So, the mason will have to wait until the weekend when Joel can hopefully put the truck back together. Joel's also working hard on buffing and staining some concrete counter tops. Those are his jobs, I get the kids. I think I have the easier job - sometimes. If I were stronger and more knowledgeable, I could help him. Because sometimes the kids drive me bonkers.
My example is this weekend Chloe was going up the stairs from 1st floor to 2nd and she stops at a step and bites it. What? I said "Chloe, don't eat the steps, yucky." What kind of child does that? I think she's still getting in some teeth too. Sometimes for dinner, she is so cranky she won't eat anything. We gave her two things of yogurt one day because she liked the feeling on her gums.
Speaking of crazy, Kylie did eat raw corn on the cob a couple of years ago. She loves corn on the cob.
Last night when we got home there was a note on our door. The mason that will be redoing the neighbor's chimney has time and wants to start but our truck is in the way of scaffolding and he doesn't want any debris to fall on it either. Um, the truck's front tires are off because Joel has been fixing the breaks (which has been a pain because of the all wheel drive but on his truck it's rear wheel drive breaks, I don't get it. It's taken Joel awhile to have the time to investigate all this too.) So, the mason will have to wait until the weekend when Joel can hopefully put the truck back together. Joel's also working hard on buffing and staining some concrete counter tops. Those are his jobs, I get the kids. I think I have the easier job - sometimes. If I were stronger and more knowledgeable, I could help him. Because sometimes the kids drive me bonkers.
My example is this weekend Chloe was going up the stairs from 1st floor to 2nd and she stops at a step and bites it. What? I said "Chloe, don't eat the steps, yucky." What kind of child does that? I think she's still getting in some teeth too. Sometimes for dinner, she is so cranky she won't eat anything. We gave her two things of yogurt one day because she liked the feeling on her gums.
Speaking of crazy, Kylie did eat raw corn on the cob a couple of years ago. She loves corn on the cob.
Tuesday, August 28, 2012
On Track
Chloe had her 18 month appointment on Friday (even though she's really 19 months). She is doing really well. She weighs 25.5 lbs and is 31.75 inches long. For an 18 month old that puts her in the 60% and 48% percentile, respectively. She hasn't really grown since her 15 month appointment which is fine. I know 24 month pants on her are long. When she was in the hospital in February, the doctors said she needs to get the RSV vaccine this coming RSV season. Her doctor looked into how much to give and the cost and she told me Chloe will need 2 doses because of her weight for the whole season which is 5 months. Each dose cost between $1500 and $2000 (funny there's a $500 swing in there)!! What! Potentially $20,000 for the season! She wanted me to call the health insurance to make sure it's covered. I called today and the deductible has been met this year so it's covered fully this year and then in January we'll have to pay the deductible first which is no where near $20,000. Thank goodness.
That's all I have time for right now.
That's all I have time for right now.
Monday, August 20, 2012
What's Happening?
Almost two weeks since the last post! Whoops! And of course now when I find a little time to write, I can't think of much. I'll start with this past weekend.
Sunday - I took Kylie and Chloe to the zoo. We had a picnic by the front entrance and then went and strolled around. In the penguin building there was a little girl standing next to us that first coughed into her hand (like whooping cough) and then said "baby!" and was going to touch Chloe's hand. I pulled Chloe into me and the little girls' mom told her not to touch. I'm not sure if it was in response to my reaction or not but it made me scared. If that child was truly sick, why would she be at the zoo. But you never know. We also headed over to Meijer Garden because Kylie wanted to and we have memberships to both places. She wanted to see the swamp for some reason. So we saw the swamp. Then it thundered a bit and I said "time to go." What a busy day.
Saturday - Went to a wedding. Kylie loves weddings and seeing the "married girl" and getting to dance. It was a beautiful wedding, I give lots of credit to the bride and groom and all who pulled it off in a couple of months. The father daughter song was "My Wish" by Rascal Flatts. That was the song in the e-card I sent myself from Faith.
Friday - I finally finished our story for Ella Bullis Foundation. I did it in pieces, so it wasn't too bad. Although, how can you not cry when you have to tell the part about your baby's death... I'll post here when I can, with a picture as I don't have a current family picture yet.
Sunday - I took Kylie and Chloe to the zoo. We had a picnic by the front entrance and then went and strolled around. In the penguin building there was a little girl standing next to us that first coughed into her hand (like whooping cough) and then said "baby!" and was going to touch Chloe's hand. I pulled Chloe into me and the little girls' mom told her not to touch. I'm not sure if it was in response to my reaction or not but it made me scared. If that child was truly sick, why would she be at the zoo. But you never know. We also headed over to Meijer Garden because Kylie wanted to and we have memberships to both places. She wanted to see the swamp for some reason. So we saw the swamp. Then it thundered a bit and I said "time to go." What a busy day.
Saturday - Went to a wedding. Kylie loves weddings and seeing the "married girl" and getting to dance. It was a beautiful wedding, I give lots of credit to the bride and groom and all who pulled it off in a couple of months. The father daughter song was "My Wish" by Rascal Flatts. That was the song in the e-card I sent myself from Faith.
Friday - I finally finished our story for Ella Bullis Foundation. I did it in pieces, so it wasn't too bad. Although, how can you not cry when you have to tell the part about your baby's death... I'll post here when I can, with a picture as I don't have a current family picture yet.
Wednesday, August 8, 2012
God Said "No"
We still don't have Internet hooked up, but the room looks great. Every night I go and pick up the mess that the girls created. It wasn't too bad last night. Maybe because Chloe was busy throwing her shoes down the stairs instead of messing up the room : )
I wanted to share something I received in an email years and years ago. I think I got it from my brother-in-law, Paul. It spoke to me then and it still speaks to me every time I read.
Isn't it really good? I think so.
I've been very bad about keeping up the blog, one main reason is the no Internet thing. But it just seems like I'm go go go now. Someone retired at work so my work load has increased, but so far so good.
I'm suppose to write 'our story' to send to Ella Bullis foundation so they can put it on the website. I got that email the beginning of July and I said "I'll get it to you in a week." Well 3 weeks have past. Thankfully they are great people so it's okay, but I feel bad, like missing a deadline or bill payment - icky feelings.
Honestly, I don't know if I can write our story down. I know it in my head, but to think back to write something down is terrifying me. It's sad and it will make me cry. I will do it because I said I would but how to get started.... Since we were featured on their site before there is a little story on us that I can start with.
Joel and I are both tired lately because Chloe seems to have issues during the night lately, where she's up crying. Sometimes it's just a couple of seconds, and I can get her back sleeping. Other times something is wrong like last night, I think her tummy hurt and she pooped finally at 12:30AM and did settle down after that. I like to sleep all night long, we need to try to head to bed earlier, that might help. It's funny because she is still a baby, like she was last year, except she doesn't have to eat during the night, so the encounters usually are quicker. I've got to remind myself to enjoy it now, she won't be this little for long. All I have to do is look at Kylie and what a big girl she is getting to be. Often now Kylie and I color together - it's the best. Her favorite color is all the colors : )
I wanted to share something I received in an email years and years ago. I think I got it from my brother-in-law, Paul. It spoke to me then and it still speaks to me every time I read.
GOD SAID “NO”
I asked God to take away my habit.
God said, No.
It is not for me to take away, but for you to give it up.
I asked God to make my handicapped child whole.
God said, No.
His spirit is whole; his body is only temporary.
I asked God to grant me patience.
God Said, No.
Patience is a byproduct of tribulations; it isn’t granted, it is learned.
I asked God to give me happiness.
God said, No.
I give you blessings. Happiness is up to you.
I asked God to spare me pain.
God said, No.
Suffering draws you apart for worldly cares and brings you closer to me.
I asked God to make my spirit grow.
God said, No.
You must grow on your own!, but I will prune you to make you fruitful.
I asked God for all things that I might enjoy life.
God said, No.
I will give you life, so that you may enjoy all things.
I asked God to help me LOVE others, as much as He loves me.
God said…Ahhhh, finally you have the idea.
Isn't it really good? I think so.
I've been very bad about keeping up the blog, one main reason is the no Internet thing. But it just seems like I'm go go go now. Someone retired at work so my work load has increased, but so far so good.
I'm suppose to write 'our story' to send to Ella Bullis foundation so they can put it on the website. I got that email the beginning of July and I said "I'll get it to you in a week." Well 3 weeks have past. Thankfully they are great people so it's okay, but I feel bad, like missing a deadline or bill payment - icky feelings.
Honestly, I don't know if I can write our story down. I know it in my head, but to think back to write something down is terrifying me. It's sad and it will make me cry. I will do it because I said I would but how to get started.... Since we were featured on their site before there is a little story on us that I can start with.
Joel and I are both tired lately because Chloe seems to have issues during the night lately, where she's up crying. Sometimes it's just a couple of seconds, and I can get her back sleeping. Other times something is wrong like last night, I think her tummy hurt and she pooped finally at 12:30AM and did settle down after that. I like to sleep all night long, we need to try to head to bed earlier, that might help. It's funny because she is still a baby, like she was last year, except she doesn't have to eat during the night, so the encounters usually are quicker. I've got to remind myself to enjoy it now, she won't be this little for long. All I have to do is look at Kylie and what a big girl she is getting to be. Often now Kylie and I color together - it's the best. Her favorite color is all the colors : )
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