Friday, December 30, 2011

Christmas

I wish I was in the mood to write, but I'm not. I never seem to be at night when I have the time (or it's when I remember). But I still want to write something.
We had a good Christmas. We went to Iowa for a couple of days and had Christmas with my family.  That was fun. We came back on Tuesday and opened our presents.  Chloe loves this Circo baby doll from Grandpa and Nanny. I think she thinks it's her little friend.  It's cute to watch her interact with the doll. Kylie received lots of gifts. I'm not sure which one is her favorite, she seems to like them all because she will play with everything.  She'll play Barbie then draw on her new board, then she'll play Polly Pockets, and of course she'll watch a movie or two.
I got a beautiful Mother's ring.  Kylie's birthstone (Feb, amethyst) is in the middle and on either side of it is Chloe and Faith's birthstone (Jan, garnet). It was very thoughtful of Joel to do that for me.  I had asked for that for Mother's Day but I was thinking a necklace, he thought of the ring which is a better idea for me. 
The week before Christmas Joel and I bought a used 2011 black Grand Caravan with 30,000 miles on it.  Our Town and Country seemed to be giving us more problems than we what to handle (although we did fix it up anyway, so we can sell it).  Our new van has the automatic doors - I love that feature.  It comes in handy when one of us picks up the girls, we can have both doors open at the same time so Kylie can jump right in and we can be putting Chloe in at the same time. Kylie would sometimes run around the van, which made me nervous. Now, no problem.
Merry Christmas to All and Happy New Year.

Saturday, December 24, 2011

Christmas is Coming

It just doesn't feel like Christmas is coming, just like Thanksgiving, I'm not feeling it. Maybe it's the fact that we don't have any snow.  I don't mind not having the snow, make it easier to drive.  I think Kylie would love to have some snow though.
I want to be a bear and sleep through the winter, maybe then my mood would improve.  I was looking at our Christmas photo that I sent to most people (still have a few to send out but needed addresses) and started imagining. I was seeing Faith in the photo, somehow sitting in Santa's bag with Chloe.  Or Chloe and Faith sitting with Kylie between them.  This might be a crazy statement but I know she was there in those spots.
When I was buying some ornaments a few weeks ago, I found some letters that were pink with white polka dots and I thought they would be cute to have so I bought the first initial of each girl.  I realized as I was doing this that the girls initials are KFC.  Faith was suppose to come out first, she was always Baby A.  But at delivery (C-section of course) the doctor said "change of plans, Baby B is coming out first."  What confusion that caused afterward.  I thought that the girls had the wrong names, but everyone else knew Chloe as Baby A. 
Hopefully tonight I will get more into the spirit. I think tomorrow I will, Kylie will be so excited that Santa came.

Saturday, December 17, 2011

Changed the settings

1. I changed the settings in here so I believe anyone can post.
2. The top blank window is where you can enter your email and get updates sent to you whenever I update the blog.
3. For some reason the pictures are in the wrong format to post. Great. I hate when it's not easy. Grr.

One Year Ago

How different today was from one year ago. For one, I remember all that happened today. Last year I was out at 11:30 AM until night time, I think.  Maybe I was in and out.  I just remember being awake early in the morning because it was hard to sleep, anticipating how things were going to go that day.

One year ago I had laser ablation surgery to disconnect the blood vessels on the placenta running between Chloe and Faith. When had arrived in Milwaukee at about 8 or 9 on the 16th and would meet with Dr. DeLia in the morning. The room was pretty big with a microwave, refrigerator, and big screen TV. Joel had the futon-like couch next to my bed. The next morning Dr. DeLia came in at 6, he said he was taking advantage of us being on Eastern time where it was 7AM. As I said, I was awake.  He took me right away for an ultrasound to make sure both girls were still alive and to get an idea of placenta placement. I had an anterior placenta which meant he had to make a big cut to get to the vessels and that thankfully he started to perform on anterior placentas about 10 years ago. (He's been helping women with TTTS since the early 80's.) Then we ha to wait for an operating room to open up and away we went. They gave me an epidural and anesthesia. I do remember waking up after surgery and freezing. They couldn't put enough blankets on me. I think I had about 10.  During that night I was so afraid the girls didn't make it because I couldn't feel them moving.  The nurse had come in because I was having contractions so she had to call the Dr. to see about moving up the next dose of the medicine that stops contractions. After she told me she did that I felt God telling me that I wouldn't feel the girls because of the epidural that I had and would continue to have for the next 20 or so hours. I calmed down after that and the contractions drastically lessened.

We spent another 5 days in Milwaukee and then came back home. I was on complete horizontal bed rest and nutritional therapy (sipping Ensures throughout the day).  If being on horizontal bed rest meant saving my girls, I would do it and not complain.  I kept pretty busy with reading, sewing, TV and Farmville on Facebook. It was hard to eat lying down so I did have to sit up for that. I wasn't really on bed rest that long.  It started on Dec 15 and the girls were born on Jan 22.

Last year, when we first found out at TTTS on Dec 14, 2010, I at first didn't take the doctor seriously. I thought "I am a healthy person, this can't be happening to us. This doctor is joking when he says I need to be on bed rest immediately and drinking Ensure. God won't let the horrible things we are being told happen to us."

Sometimes, especially lately, no matter how many people tell me or how many times I read that this was random and I did nothing to cause it, I can't help but feel like I did something wrong. Was it taking a plane ride, walking too much, the wine I had when I didn't realize I was pregnant? Why did this happen? Only God knows the answers, I can only speculate.
I feel there was a higher purpose to what we've been going through, but what?  I don't want to miss it. At Faith's funeral the deacon talked about how God sees the whole picture and we can't, we only see little pieces at a time. Maybe next year or in 5 or 10 years, I can look back and put those pieces together to see more of the puzzle and say "I see."  It's just hard right now.  It's hard but getting better, my counselor has been a great help to me.

I'm as much my old self as I'm going to be. I can laugh, I can joke, I am there for people. But I still cry, sometimes for just a little bit and sometimes for longer. I don't like people to see me cry, not even Joel. I feel it's a very personal thing. Of course earlier this year I cried a lot, about anything.

The journey's been long and still goes on.

Today, we have our beautiful Chloe with us and healthy as can be, thanks to God. She is heavy to carry around. We went to see reindeer at Meijer Garden today and forgot the stroller, so Joel put her in the Baby Bjorn (not sure if a 22 pounder should be in one of those). The reindeer were fun to look at and there was also a wedding going on so Kylie got to see the pretty girl in the wedding dress - or as she says "the married girl."  We also saw the trees for around the world, the train, and the village of Grand Rapids  at the gardens. It's a great time. Afterward we were going to go to Subway to get $2 subs but it was a bit early so we drove around and looked at Christmas lights.  Kylie fell asleep so it was more for my benefit but I loved it. My family did that when I was little so I like to do it today as well.  We have our Christmas tree on our first floor this year, usually it's in the family room on the 3rd floor, but this year because of Chloe we put it on the first floor in front of the window.  Our first floor is still in the process of conversion and it's only 30% complete. (That's out of 5 rooms, kitchen, dining, living, den, and bath.)
So we don't use the downstairs too much but Joel suggested we eat our subs in front of the tree and that was a brilliant idea.  There's also a fake fireplace in the room where our stockings are hung, it was cozy.

I was glad to get out of making Christmas cookies today, Kylie wanted to make more.  We had made a lot last weekend. I was only going to do gingerbread and sugar cookies. I had mixes for both, but when I opened the sugar cookie mix it wasn't sugar cookies. The mix was in a plastic bag with a cloth covering it and tied shut with string. The card on the string said "Sugar." I poured the mix in the bowl and there were some black chunks in it. At first I thought the mix had gone bad and then I looked more closely and saw it was oatmeal raisin.  So I had to mix up some sugar cookie mix for the cookie cutters.  We have oatmeal raisin, gingerbread, and sugar cookies.  I froze some of them as that's a lot of cookies to try and eat in a few weeks. I checked the "Sugar" cookie tag for the ingredients and it was sugar cookie ingredients, no mention of oatmeal or raisins.  Good thing no one is allergic.

I'm going to try and take a picture of the tree and post it.

Saturday, December 10, 2011

Tooth

Just wanted to share that Chloe got her first tooth! The front bottom right tooth has come through.  Now she can chew her little puffs better : ) She loves those Gerber puffs (or the store brand).

I still don't know if I should keep this blog or go back to caringbridge or somewhere else.  I stopped Caringbridge because they don't allow big size pictures and I can only have up to 50 and no video.  But I think that was a more secure sight.  Plus people can't seem to comment on this one.  If anyone has a preference, put it in the comments on the caringbridge, I will look at them.

I hope to get some new pictures up soon too.

Tuesday, December 6, 2011

Eye Appointment

Chloe had an eye appointment last Friday.  I completely forgot to blog about it, not that's I've blogged in awhile.  She is a bit near-sighted.  The doctor wasn't too concerned as Chloe's world is around her and she doesn't really need to see far away.  She will be checked again in 6 months as the eyes can change.  No glasses yet.

December 7 is World TTTS Awareness Day. I would like to remind all about this horrible disease.  Here is some information off the tttsfoundation.org site.  The woman who founded this also has a survivor and an angel.  I feel early detection is key. I would say I was not detected early as I was 19 weeks, but that's what happens when your first pregnancy was normal, no early checks.

-Twin to Twin Transfusion Syndrome (TTTS) is a disease of the placenta (or afterbirth) that affects identical twin pregnancies.
-TTTS affects identical twins (or higher multiple gestations) who share a common monochorionic placenta.
-The shared placenta contains abnormal blood vessels which connect the umbilical cord and circulations of the twins.
-The common placenta may also be shared unequally by the twins
-The events in pregnancy that lead to TTTS are all random.
-TTTS is not hereditary or genetic, nor caused by anything the parents did or did not do.
-TTTS can happen to anyone.

Wednesday, November 30, 2011

I wrote this to another woman on my Facebook TTTS Survivors with Gaurdian Angels group and I want to share it here:
It was crazy on Wednesday night my parents were watching the news and I was flossing my teeth, I heard something about people spending last Thanksgiving in the hospital. I had a feeling it was a TTTS story and it was! I was excited, TTTS is getting recognition! But of course it was a happy ending story as both boys survived (born at 27 wks) and are doing great a year later. I don't think they went into much detail on the disease, it was a short story. I was upset after it aired because that's the only publicity TTTS gets - the happy endings ones.  I want to contact that TV station and say "hey, you guys need to research and report that not all the babies make it. If I hadn't gone through the experience personally I would think from that story if I got pregnant with twins and had TTTS, the babies might be born early but they'd be okay."
That's all.  Missing my Faith tonight.

Monday, November 28, 2011

Thanksgiving

We went to Iowa for Thanksgiving.  It was a good time. The drive wasn't too bad, but I only drove for 30 minutes.  We left at 3:20 and got to my parents at 10:45 (9:45 central time).  The girls were pretty good, Chloe had a rough patch for awhile where she wouldn't calm down.  Kylie was just fine the whole time because she just watched movies.
I got to sleep with Kylie all weekend - that's an experience.  She turned 180 a couple of nights and usually she'd have to have some part of her touching me. Plus she talks in her sleep and grinds her teeth. Oh boy.  I don't like the grinding teeth part but I'm not sure how to go about fixing that.
Joel had Chloe in his room and she was having "crib parties" as he calls them.  She would get up at 3 and not really go back to sleep unless he was rocking her in a chair. Except on Thursday night when Joel went shopping all night.  He was at Best Buy at 5 PM Thursday and was number 100 in line.  His picture was on the front of the paper.  He got what we wanted.  He's crazy but I think he enjoys doing this once a year.

I feel off on my seasons and it didn't really feel like Thanksgiving.  It's probably because I missed last winter and most of spring that I'm messed up.  Some days I think to myself "the warmer weather will be here soon. Oh wait, no it won't."  That time I thought would never come back in March is here, Chloe is doing great (except she has a cold, poor girl) and I am so thankful for her progress.

Sunday, November 20, 2011

Holidays are Coming

I want to be happy and excited about the holidays this year. But I feel like I'm holding my breath, waiting for something to happen. Last Thanksgiving we were celebrating finding out we were having twins. My one regret with that is not telling all the family right away because I wanted to see the looks on their faces.  In a way having multiples is like winning the lottery. It's scary and exciting all at the same time. The weeks before Christmas were the bad ones, finding out about TTTS and the surgery - I can't even believe we went through that, I guess we are stronger for it.  But I feel like because it's Thanksgiving and we'll be seeing family, something will happen that we can't go or we'll be making a trip to the doctor before we go. Chloe does have a cold now. Kylie is fine but a lot of kids at day care are sick. I had something on Friday because I had aches and chills.  I'm glad it only lasted a day.
I pray the God will settle my worries about this coming week and blesses us with some quality family time.
I also pray I have patience and wits tomorrow at work. I should have a new computer because my current one is slow, like being on dial-up. It would take me 30 min to an hour to log on and another 30 min to get into email, maybe 5-10 to open files. I almost put up my Christmas tree, but I didn't want people telling me it's too early.

I haven't looked into another blogging site yet, but I was wondering if I just stuck my email address on here then people could comment. I can't promise to write but, my own family hardly hears from me (I think they are glad I have a blog just to get an idea of what's happening).
Email:  emersonlisa3@gmail.com
It's the one I set up for this blog so hopefully I won't get spammed but I probably will. What interesting about the address is I tried using lemerson and that was taken so then it showed me what I could use and when I saw emersonlisa3 I knew that was the one for me, 3 kids. 
That reminds me, I went to Sam's Club on Saturday for an eye exam and I filled out some paperwork. A question on there said "Any major surgeries?" I didn't know what to put because I didn't want to get into all the detail with the eye doctor. I just put "C-section."  A few months ago when I gave blood, the nurse asked about my pregnancy last year and the birth. Then she asked if everything went well. I said "No....Oh with me, everything was fine, no problems."  She kind of got flustered and apologized. I told it's okay. I wasn't thinking about the question, at the eye exam I had the time to think about the question to form an answer.
I have some laundry to take of before bed. 

Wednesday, November 16, 2011

Soo... Don't know if I'll keep this blog as I hear it's hard for people to comment.  Maybe when I feel like I'm not breaking things I will look into a new blog place.  Apparently at work my hard drive will be crashing sometime soon and my computer is getting really slow.  The IT guy just gave me a different computer in Sept because of some issues I was having in Excel.  Deep Breaths.
On the good news side. I have really low cholesterol : )

Monday, November 14, 2011

On Track

Chloe had her developmental appointment today and it was good news!  She scored in the 7 - 8 month old range which is super.  She was the star of the morning. I think it left her a bit over stimulated though as she didn't really take a good nap today until I put her down at 7. When we were leaving another baby had arrived for an assessment and he had the breathing machine and I think some other things. It reminded me how thankful we are that Chloe is doing so amazing. The people that came to see her kept saying "she's a 26 weeker? you would never know it."
Good Job Chloe!

Sunday, November 13, 2011

Nice Weekend

Nice weekend we had, the weather was good, a bit windy though so we didn't want Chloe in that without a hat.  I thought of taking the girls to the park but when I was outside this morning, a gust of wind came strong and I thought "nope."  Joel had to go into work today to catch up so it was just the girls and we watched a movie. Kylie likes Despicable Me which Joel bought for us to watch in the hospital last year after the laser ablation surgery in Milwaukee.  I had to tell him to turn it off because it hurt to laugh so he just watched it on the laptop with headphones.
Kylie and I made pumpkin pie with real pumpkin I had made up last weekend to make pumpkin soup, which I made way too spicy for me, too much black pepper and/or cayenne pepper.  I also got some house chores done but otherwise a pretty laid back day.
Yesterday Kylie had her first ballet class. It didn't go so well.  It's a closed class so the parents have to leave and either run errands or go across the hall and sit in another room.  Kylie was not having any of that. I wished I wasn't the one to take her because I think she might be more shy when she is with me just because that's how I am too. The teacher let her and I watch from the door.  I kept to the side so the little girls could only see Kylie and they were asking why she wasn't joining them.  Plus the sheet said comfortable clothes and ballet slippers.  I should have known that all the little girls would have a ballet outfit. Next week we'll go back and I hope she wants to participate, I kept saying to her "what are they doing, do you want to go in there too?"  No luck.  I believe we have a few dance outfits that pass for ballerina that she could wear.  Why did I sign her up for this?  Oh that's right, they moved the gymnastics to a Wednesday morning.
Yesterday afternoon we went to church and had dinner. After dinner I let Kylie make a Christmas tree.  It's a great idea we got from her Turtle magazine. You take a sugar cone, mix green food coloring with white frosting (I had to mix yellow and blue but it turned into a better green). Spread the frosting on the cone and then decorate with marshmallows, m&m's or other candies.  I just bought a things of 4 different sprinkles and we shake those on the tree.  One of the sprinkles are stars so we make sure to get one on the top of the tree. Kylie had the green tree, Joel and I had white ones as I didn't feel like coloring more frosting.  We made these last weekend too, so I still have frosting to use up. 
Tomorrow morning is the 2 hour developmental appointment.

Saturday, November 12, 2011

Good News



This morning, November 12, 2011    Kylie, 3 and Chloe, 9 months

Yesterday, Chloe had her cardiologist appointment.  It went really well, except the part where she had to get an echo on her heart.  That was hard to keep her lying still. The whole appointment took an hour and a half.  Lots to go through. The doctor was very pleased with Chloe and her progress.  He said they like to see chubby babies as that means things are going well. The valve that was ballooned open as well as leakage from the valve is what he considers minor.  Monday will be her developmental appointment.

Not sure if I'm doing this blog correctly. I don't have a ton of time to figure it out, but so far so good, right?

Tuesday, November 8, 2011

I Did It

I finally did it. I hope this works out.  I set up this blog to give me more options than what Caringbridge can.  We'll see if this works out.
Chloe was very drooly today. Daycare changed her shirt once and the bib she had on was pretty wet when I picked her up.
It's funny to listen to Kylie talk or sing. The stuff she says. She was playing with some princess dolls and Mulan was mad at Belle, I could hear Kylie voice both princesses. Then Belle walked away and Mulan started to sing a song.  I caught "Frosty was made of snow and he was heavy."  Too funny.
I wonder what it will be like when Chloe can join in - hopefully not fighting all the time.